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Category: Casa Ahava

Not the First or the Last

A Jon Post

It wasn’t the first or the last time I will plead that a test return without signs of cancer.

Regina

Regina – Returning

Regina will be coming back to Casa Ahavá. She wasn’t cured. God heard our prayers, He listened to us, He wept with us, He knelt beside us, and He withheld the miracle. Regina has cancer on her lungs. Her CT scan stared unblinking at her doctor and I from its fluorescent backlight. It screamed its unapologetic truth at us through her lung tissue and chest. Two spots showed their wispy contrast against health and oxygen. Two nodes where they did not belong gaped back at us from that fluorescent box. Cancer. Metastasis. Pain.

It wasn’t the first or last time I will start a conversation with someone, “This is going to be hard. You are sick.”

Regina will spend the holidays with her family north of the city called Beira in a little village named Marumeu. From there, at the beginning of next month, she will get on a 4 hour train ride, then a 16 hour bus and return to the only place in this country where there is medicine for her. Here in Maputo.

It wasn’t the first or last phone call I will receive informing me that someone has died.

Separation

Pedro – Separation

Pedro’s brother called me.
It had been a month since any of Pedro’s family had answered their phone. Pedro’s number stopped working soon after we got him home and his two brother’s number hadn’t been working since the first week of November. Finally, last week, I got a phone call from a number out of South Africa. Pedro’s brother wanted me to know… Pedro closed his eyes for the last time two weeks ago. He held Marcos, his newborn son close, and finally ended the pain of separating his soul from his body. Pedro finally met face to face with the one who passed the test on his behalf.

It wasn’t the first or last time I will remove gauze and tape from a wound and feel the drop in my chest at the sight of a tumor that has only grown, not shrunk.

Unwavering

Benjamin – Unwavering

Benjamin’s pain level has increased though his courage and smile are unwavering. His tumor has grown as he has waited for his body to recover and be ready for another round of chemo. He rests a lot, hoping the pain behind his tumor will diminish and that he may experience a pain-free day. He has been waiting for days now.

These are not firsts nor lasts

Here at Casa Ahavá we have times when it seems like battles are won and we walk in the sun and there is only laughter and relief.
The last weeks have not made up one of those times. These last weeks, there has been shadow. Death’s dark sting has pricked Casa Ahavá twice… Tomás also died last month.

Remembered

Tomás – Remembered

Tears have leaked from eyes more than laughter has burst from smiles.
Now in our mourning we wait for our Comforter.
I’m so glad that Jesus Himself, asks the Father to send us a Comforter, a Counselor, a Helper, an Intercessor, a Strengthener… who will remain with us forever.

Come oh great Comforter. How we need your help, intercession, strength and comfort now.

What is goin’ on

A Layne Post

First, I would like to update you on Regina, as we have pleaded for your prayers. We have her CT scan in our possession, and we will take it to the doctor, Lord willing, on Monday to hear the results. So keep the prayers up and we’ll let you know. For now she is up north with some of her family, enjoying time away from the hospital and remembering why we fight so hard and endure so much.

Secondly, we would like to welcome two new patients to Casa Ahavá – Tia Berta and Tia Gilda! They arrived yesterday and are settling in, getting used to Gasher and learning the markets on our road. Berta is a lovely grandmother from Beira, the same province the rest of our patients have been from. She is kind with a brightness in her eyes and an absolute joy to add to our family. Gilda is 43, from Tete a province further north, and has a husband and 4 children she has left there. Her oldest is 23yrs old and her youngest is 4. It has obviously been difficult for her to be so far from the youngest boy. Gilda is smart, easy going and I foresee that she will slide into life here without hiccup. We are so happy they are here! I’ll snap some pictures of their beautiful faces soon, as I know it helps you to “know” them when you have a face with a name. Pray for grace as Benjamin returns on Tuesday and the 3 of them settle into community together.

Third, we went on vacation! When Casa Ahavá is vacant, it is a rare event, and we feel a little bit like empty nesters  with the need to getaway and be free. (That could be read with a negative connotation, but please don’t take it that way; I think you can understand our sentiments.) We packed up the car, loaded the girls and went on a 4 night beach vacation to a lovely spot we’ve had our eye on for 2yrs now. The owner graciously gave us a wonderful deal and was incredibly flexible with us, as our dates changed multiple times. I knew I was ready for vacation as I anxiously counted down the days, but I had no idea how absolutely refreshing it would be. Sometimes vacation with a 3,2, and 1 year old can feel like more work than play, but not this time! We attempted to have multiple families come along with us, but in the end it was just our family, and looking back I am confident the Lord knew just what He was doing. The girls had a blast, and Jon and I had lots of time to sit together, talk, and reflect. This vacation was a precious gift.

Last news, but big news, we are buying a van! We knew with the addition of baby Selah we would need a bigger vehicle, as my car only barely fit the 3 car seats in the back, and it seems like this van has come to us by the will of God. Not only will it fit our family, but all of our patients as well! No longer will our patients have to climb up a step stool and then climb through the back of Jon’s Land Cruiser and over seats. They will now have easy entrance! Hooray! It is a diesel, which is much cheaper to drive here, and we are hopeful our monthly fuel cost will come out about the same! How awesome is that? We are so thankful to a generous donor who is helping us with the bulk cost of the vehicle. We are humbled! The van will hopefully be officially ours sometime next week, after the money has been wired and exchanged. It will difficult for me to say goodbye to my little car, as I grow strangely attached to things like cars, but I will adjust and learn to love my much bigger van… and learn to park it!

van1 van 2

 

 

 

 

 

 

 

Thanks for your continued love and support. I am forever aware that Jon and I are not in this alone, that we have a team behind us, holding us up and pushing us forward. We are grateful.

Devastated

“This X-ray doesn’t show me what I need to see” said Regina’s doctor yesterday.
Last month Regina finished her 6th month of chemotherapy and over the past few days she’s had an ultrasound, blood tests, and an X-ray taken of her chest to find out if there are still signs of her breast cancer.
“The ultrasound and blood tests look good though” her doctor continued. Still, he looked at me and I could tell he was uneasy with declaring her cancer in remission and her treatment course finished. It takes a few days for the Central Hospital to schedule and perform an X-ray for a patient, a result of a valiant effort to keep up with the constant demand in a city of 2 million people combined with the limited resources of a developing country.
“I tell you what,” I said, “I will take her to a private clinic this afternoon and pay for an X-ray there, then tomorrow I’ll bring that back to you so you can feel better about making an informed decision and we can all rest easier about her health.”
“No problem.” Her doctor replied, “Just swing by in the morning and I’ll look at it then write up her discharge papers and she can be on her way home the next day!”
“Perfect!” I said, “See you in the morning.”
Regina and I left the doctor’s office smiling and I could see in Regina’s eyes the anticipation and joy of being so close to going back to seeing her family. That afternoon we sped through a little private clinic up the road from our house (where we’ve taken Pedro and Filomena for emergencies in the past) and got a quick X-ray done.
This morning I found Regina’s doctor in the oncology conference room busily doing his best to care for the hundreds of patients he is responsible for. He looked up at me and smiled and, when I asked if he had a sec to look at Regina’s X-ray, he quickly moved aside his current task and held out his hand for the X-ray.
When he pulled out the plastic film and held it up to the light, his face clouded over.
“This isn’t what I wanted to see.”
My heart sunk. Still… I hoped.
“This isn’t what I hoped for.” He reaffirmed.
He indicated a cloudy section, contrasting with the dark around it, and said, “This should be cleaner.”
“What do we do?” I asked.
My heart was racing. Regina, dear sweet Regina, oh, how I wanted to send her home tomorrow. Oh, how I wanted to get her to the “nice” bus at 2:00 AM tomorrow, the one with air conditioning, with a TV, with a bathroom. Oh, how I wanted her to see her grandchildren, all waiting and hoping that their grandma would be home soon.
“She needs a CT scan.” said Regina’s doctor. And he pulled a little piece of paper out and started writing instructions to the CT scan technician.
Carcinoma of the breast, suspected it has metastasized to the lung or bone.
My heart sunk further.

Beach Day

Beach Day

Regina

Regina

Metastasized.
The word no cancer patient ever wants to hear.

After a few more minutes of conversation with the doctor, I called Layne. She was at home with our three girls and Regina was preparing to leave early tomorrow morning. I told Layne what the doctor told me. We agreed that Layne needed to tell Regina right away.
So, three kids running, playing, crying in the background, Layne approached Regina and started, “Regina, Jon talked to the doctor. We have some bad news…”
Regina listened stoically to the report. Her face betrayed little emotion as it began to sink in. She tried to keep doing the cleaning Layne had found her in the middle of. Soon she was leaning against the wall… crying… asking God for reasons that didn’t come… looking for answers to questions too terrible to voice.
Sitting on a bench back at the hospital, praying and venting my frustration I shook my head over and over.
Not this one. Not this one. Cancer! You shall not have this one! My heart and soul screamed out, desperate for a confirmation to my challenge. I sat, lungs and throat sucked dry and raged against a disease that ravages so many people I love here.
NOT THIS ONE, CANCER! My silent scream echoed out to an empty courtyard.

I don’t know if I’m right. I don’t know if Regina will have a clean CT scan. I don’t know.
But I pray.
I pray.
Layne told Regina the plan. For the next 8 days we will pray. Regina will pray. Regina’s friends and family will pray. Our friends and family will pray.
We pray for a miracle.

We pray for a clean CT scan.

Don’t make us liars.
Pray with us.

Last Weeks

A Layne Post

There we sat at a lovely café, girls giggling in the sand pit, me catching up with an old friend, sweets and sodas in array on the table, Jon and Pedro in chairs quietly talking. I knew the topic of the conversation – scans were bad, can’t operate, can’t shut the wound, no use doing more Chemo, you are dying.

That evening with hands in tight gloves, wiping a large wound, I tried to speak hope, hope of another life. I tried to pray peace, you know that kind of peace the Bible talks about that surpasses all understanding? Yeah, that kind. He shuffled out of the house to his room, me taking note of the weakness in his right side.

I peeked out my kitchen window and saw him lounging in the sun, eyes closed, head in hand. Depression was near. Understandable.

He woke up and we saw his wound had bled through the bandage. We quickly reassured it was no problem, so I snuck in the room to get the pillows and sheets to clean. When I saw the mess, my tummy turned. I gathered everything up and went to the kitchen. Everything needed rinsing before a bleachy wash. I willed myself one item at a time to continue, telling myself I could cry later. I got it all in the washer, went to my bathroom and let out a few good sobs. He was dying. It was messy. I hated this.

Pedro thanked me for my service, so full of humility and gratefulness. “It was nothing,” I assured, remembering and hiding my struggle to make it through. Oh God, help me do this.

The girls burst from the door for their afternoon play. We sat in the warmth of the sun. Anaya played in her car, Jovie jumped on hers, and Karasi toddled behind. Pedro laughed out loud. So good to hear.

Jon told me later about a conversation between him and Pedro about eternity. Pedro compared it to taking a test and not knowing the results until the professor grades it, one couldn’t know if they passed until they got there. This made for the perfect example – Jon shared the good news. Guess what, Pedro? Jesus took the test for you, and He got the perfect score! Isn’t that awesome? It became their thing for the week. “Who took the test?” “Jesus.”

Dressed for church, getting diaper bags ready, we got the call  – Pedro fell in the bathroom. He had been dizzy, the floor had been wet, he slipped. He lost feeling in his right leg. We told him he could rest and I would stay home with Karasi to make sure he’d be alright, but he insisted, he wanted to be at church.

It was the night they were to drive to Pedro’s home. Sara came to the door, “Pedro. It’s starting again.” We knew the drill. Seizure had started, Jon rushed out, sat next to Pedro and began praying. Seizure slowed and stopped. Pedro said, “Brother Jon, this body is broken.” Jon communicated that he understood, he spoke of our hope for a new body soon. Pedro responded, “I know, but separating my spirit from THIS body… it hurts.”

Yes. Yes it does.

Sara popped her head in again, this time saying Pedro was calling for me to say goodbye. Pedro wanted to thank me for all Jon and I had done for him, how much we had helped him. I wanted to lose it. Instead I bounced Jovie on my lap, told him he is our family, that we love him and have been nothing but happy to have him at our home. Tears would be for later. I kissed his cheek and assured him I’d see him off in the car.

I waved them through the gate and off they went on their long journey home. Jon tells me as they neared his village, Pedro’s demeanor began to change. He was close; he was almost home. They got to the local market and his brother jumped in the car. Pedro’s joy was evident. A few minutes later they were there at Pedro’s home. Wife, children, brother, Father… everyone there. Jon got to spend about twenty minutes with them before he needed to be back to the military convoy to get out of the area. It was shorter than he imagined or hoped, but time he was grateful for. He left Pedro in good hands. He has a loving family, a good family.

Pedro and His Son, Armando

Pedro and His Son, Armando

We don’t know how long Pedro has, but we pray he has memorable times with those he loves. We pray He takes full confidence in the fact the Jesus took his test for him. We pray for deep soul peace. We pray for ease of transition between this life and the next.

Pray with us?

Hope Changes

A Jon Post

I sat on the couch this week with my wife. I sat and wept for the frustration of the shattered reality that there is no forthcoming solution to the place we find ourselves.

Last Month

Last Month

Last month Layne posted that Pedro had an MRI and we were waiting for the next step to be determined based on the results of that MRI.
The results came.
Placed up against a florescent light to show the contrast between bone, tissue, cerebrum, artery, and tumor, this thin film of plastic brought with it ugly words.
Tumor, extensive re-growth, malignant, invasive, terminal.
An apologetic neurosurgeon sat in front of me and explained her inability to even close the surgical wound left behind by his first surgery.
“…only thing left to do is help him manage pain and dress the wound.”
And she left me with the honor/dread of telling Pedro his prognosis… of cutting the spidersilk thread we all had held on to that maybe surgery could help… of telling him that his seizures and loss of muscle control were only the beginning… of telling him that there is a God who loves. A God who loves. A God who loves.
Now… 1 week later, he sits in a wheelchair in my back yard.
Unable to move his right arm or leg.

Laughter

Laughter

And I sat on my couch and wept. In this situation, because of his rapidly deteriorating health, we would have hoped to bring Pedro’s wife and children to him here at Casa Ahavá. But just three weeks ago Pedro’s son was born. His forth child, not even a month old, waits for his daddy to come home. A daddy who cannot hold him, cannot stand tall with him, cannot wrap him against his chest and tell him how proud he is. This 3 week old cannot make the journey to Pedro.
Pedro’s health means he cannot get on a bus or an airplane to get home. His family cannot get on one to come here.
Let’s get Pedro home.
Thursday morning at around 4 we will help Pedro into the car and I’ll drive him the (depending on road conditions) 12 hour trip to his home village. His home is in a bit of a remote area but we’ll make it.
So our hope has changed.
It’s changed from hoping for long months, even years, to hoping for enough days to get home. Just two more days. And it’s changed to hoping for more than just what this broken body can offer. Our hope has changed. Pedro’s hope has changed.
A God who loves. A God who loves. A God who loves.
Please pray for us as we drive to Muxúnguè on Thursday to get Pedro home.

The Route

The Route

Pray that our hope is not deferred but that Pedro’s longing to see his son is fulfilled.
Please pray with us for Pedro’s heart.