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Helplessness in the Age of Power

A Jon Post

The more I think about and hope to become more skilled at reflecting Christ to the sick and the dying the clearer it becomes that, despite the simplicity of the gospel, there is no simplicity in the practice it demands.

What is the good news to the 17-year-old boy living in my home whose lymphoma protrudes from his chest, his arm pit, his neck, and his ribs? What is the good news to the 43-year-old widow who lives in the liminal space between living and dying, unable to know if her cancer is growing as she does radiation therapy or receding? There are 14 men and women living in my home. Nearly all of them are unsure if they inhabit the land of the living or the land of the dying.

Please imagine that with me.

They sincerely do not know if the cancer detected in their bodies is responding to the poison dripped into their veins. The do not know if the speed-of-light radioactive particles ripping cell membranes and dignity to shreds is doing the same to their cancer, giving way to more living or simply prolonging an already prolonged dying.

So we wait in the unrestful place of helplessness.

Social workers and developmental experts like to talk and write about something they call “learned helplessness”. This is the idea that, after prolonged experiences of shock, pain, and betrayal, people and animals learn that “nothing they do matters”; there is no act, real or imagined, that could provide an escape from that shock, pain, or betrayal. Surprisingly enough, only within the past few years have researchers discovered that the original theory of “learned helplessness” was precisely backwards; that is, passivity in response to shock is the default, and that we learn that we can escape from that shock or pain. We learn control, we learn that we have power, we learn that escape may depend on our own responses and actions (if you are interested in this, there is a very neat article here about it). I’ve realized that it has become important that I unlearn helpfulness in many of the ways I serve at Casa Ahavá.

I mention the above because it seems important to me to enter deeply the spiritual reality (my paragraph about Christ and the gospel), the soul/psychological reality (the above paragraph about learned helplessness), and now I’d like to enter with you into the corporeal reality (our bodies, our dust, our fingerprints).

So why helplessness? Well, as I mentioned above, our psyche seems to begin with the assumption that we are helpless. With all of our modern medical advances (at least in North America and in Europe), it turns out our bodies still die. No matter how much we internalize the idea that we are not helpless, no one has yet found a way not to die. We can try and try to learn that we are not helpless, yet there comes a door through which we all pass on our way into our dying.

That door is helplessness. No act, real or imagined, will keep us from the land of the dying.

In Casa Ahavá, in our world of the sick and the dying I ask you to please imagine with me the helplessness of not knowing whether you are living or you are dying. Perhaps you, dear reader, have had cancer or have walked alongside someone who has. Maybe it was Krohn’s disease. Maybe it was HIV/AIDS. Maybe it was Parkinson’s. Maybe it was Alzheimer’s. If you have walked the paths of those dark forests, you may have come across this painful realization: You were taught a lie. You were taught that helplessness is wrong and that there is always an escape. You learned helpfulness. In an age of power and control, someone has tried to convince us that they can be delivered into our own hands.  

Is this important to you, dear reader? Is this stuff ok? I truly don’t want to bore you with this but it has felt more and more urgent for me to know the fellowship of Christ’s sufferings (back to the spiritual reality, right?) and this seems like an important pathway through that dark and confusing forest.

So what connects helplessness to the fellowship of Christ’s sufferings? I’d like to quote just a few verses of Scripture here, if you will be so kind as to bear with me:

He was oppressed and afflicted,

    yet he did not open his mouth;

he was led like a lamb to the slaughter,

    and as a sheep before its shearers is silent,

    so he did not open his mouth.

By oppression and judgment he was taken away.

    Yet who of his generation protested?

For he was cut off from the land of the living;

    for the transgression of my people he was punished

He was assigned a grave with the wicked,

    and with the rich in his death,

though he had done no violence,

    nor was any deceit in his mouth.

Yet it was the Lord’s will to crush him and cause him to suffer

Isaiah 53:7-10

Does that sound like helplessness to you? It does to me. The man to whom this prophecy refers had all power and authority laid before his feet… and he chose helplessness. He chose to be led away, silent, without protest, crushed, and suffering.

Yesterday I had a long conversation with a 23-year-old boy dying with cancer with a large open wound which has taken away his ability to walk. The cancer has robbed him of his dignity, his privacy, and his strength. And I can give none of that back to him. No action of his or my own, real or imagined, can provide escape from his affliction.

Today I looked a 17-year-old in the eyes as he showed me another painful lump protruding from his flesh and I could not tell if the mass under his skin was greater or smaller than the fear in his face.

For you see, I have no power here. I am helpless.

A wise man recently told me that the whole arc of the Passion narrative bends toward helplessness. Who then am I to seek power and control (helpfulness) when Christ gave those up?

To those of you reading this who pray with us, partner with us, are participants in this broken-to-be-given project that is Casa Ahavá, I say this: The blessing of serving in Mozambique is to become more comfortable with the spiritual reality of helplessness. So: here we are; send us.

2021 Here We Are!

In December the Covid-19 staff thanked Jon for his support over the months

Jon continues to serve in the Covid unit at the central hospital encouraging and supporting their emotional/spiritual health as needed. Mozambique’s numbers are rising and thus the strain on the staff as well. We are trying to be creative in thinking of new ways to love them.

Casá Ahava feels busy and alive. We did some much needed maintenance around the place over the holiday, while patients went home to enjoy the end of the year with their families.

Meet our current patients at Casa Ahavá:

Antonia
Bazilia
Zinha
Augusta
Imakalda
Luisa
Chang
Lucas
Naldo

In other news, Jon’s cousin Caleb came to visit over the holidays and help us renovate a small veranda into a new consult/bandage changing room! His church back in Tennessee helped fund the whole thing. AMAZING! We have since started regular meeting with our patients, connecting about symptoms and well-being. I think they are feeling more seen, heard, and loved!

Finally, starting on Monday we are excitedly beginning renovations on a small room outside, which is currently used as Jon’s tool-house. For some time we have noticed that our current men’s side usually sits with 2-4 beds open, while there is a line at the hospital waiting for women’s beds. When we created the project it seemed natural to do 6 women’s beds and 6 men’s beds, however, the need is unequal. We are going to turn the new space into a 4 bed room with an en-suite bathroom, so that the current men’s side can be transitioned to another women’s side. When the project is complete we will be able to offer 12 women’s beds and 4 men’s bed in addition to our hospice in the our home. It feels like a natural and proper step and we are thankful as the Lord blesses each step we’ve taken.

Thank you for your unwavering love and support, even in such a trying time around the world. Lord willing, we will travel to the United States in June and look forward to visiting with as many of you as we possibly can!

Giving Thanks

Reflecting.

Breathing.

Giving thanks for God’s faithfulness through all our seasons. He remains good.

Last month we had a few sudden difficult weeks, but as always, the Holy Spirit was near. For now, we are grateful it seems as though life has calmed, at least patient-wise.

This week we got the chance to go the beach. It was a little cool, especially for the ladies, but nice to get out and get some fresh air.

Jon’s cousin is coming in December to visit and do a work project at our house to renovate a little room for bandage changes and counseling. We are really excited to spend time with him and show him our beloved country. The girls are excited to have someone else around for Christmas!

We are aiming to return to the States for our furlough toward the end of June next year. Given our big family and 2.5 months we stay, planning starts early. We look so forward to hugging many of your necks, looking into your eyes, and telling you how very grateful we are for your love.

And the Days Move On

A Layne Post

How time is passing, and those we were getting know have quickly eased into those we call family. We have grown comfortable with each other, learned each other’s ways, each other’s preferences. We have months to recall, perhaps it is not much, but progress. We can sit in silence and not feel awkward. How nice to have things to call on, things to laugh about. She likes vors sausages, he likes physical fitness and learning English, she is always serious and rarely peppy, she like yogurt when she feels sick, she always gets mouth sores and recovers slow, she is worried about her upcoming school exams, etc. On the other hand, how hard it is when difficult conversations arise… prognoses or outcomes.

The switch from patient to friend/family is not recommended by any formal education. They tell us that need for emotional separation is essential to survival. Distance is key. But what happens when God called into this? Into the impossible? Into the “you’ll never make it”? Into the inevitable burnout?

Supernatural sustenance. He does it.

We do our best at self care, at noticing our shortcomings, our short breaths. When our chests feel heavy and flashes of difficult moments become hard to shake from our minds, it usually means it is time for some nature, some family, some seeing the greatness of our God in His creation, glimpses of our Sustainer, our ever-present help in times of trouble. We are at that point.

This week we will head for a couple days to a nearby beach, made possible by the generosity of a stranger become friend. The weather looks unfavorable, yet I am assured the Lord will meet us. He always does. Pray for us! It is our desire to love and support those in our care the absolute best we can.

Pray for Casa Ahavá. 3 patients will do Chemo this week, making for a rough two weeks ahead.

We are forever grateful to you, our supporters. Your prayers and support are noticed and cherished. Thanks for being part of our team, part of making a difference at Casa Ahavá: Lucas, Imakalada, Gisella, Changue, Olinda, Luisa, and Augusta’s lives… and all those we are supporting in their homes… Madelena, Rosa, Custodio, Armindo, Eugenio, Joanna, Filomena, Rebecca.

Casa Ahavá Reopens

A Layne Post

I cannot remember the exact day we closed, but I think our house as a project was shut for about two months, due to corona virus. The hospital had thinned out the ward, trying to get patients from other provinces back home, and since they are the ones we focus on, there were no other good candidates. Jon kept working at the hospital, but our house felt quiet and strange. The girls kept asking when Tias and Tios would be back. I love that they enjoy our ministry as much as we do. Sometimes I wonder, but this was a good reminder. I actually was recently reflecting on our journey to where we are now and realized my girls have had patients around since my oldest was 2 years old and my youngest two never knew life without Tias and Tios around. This is our life!

We did get to the beach for a quick trip to catch our breath, while the house was empty. Here’s a couple pictures:

As soon as we heard there were a potential 5 ladies in Oncology who could come to our house we jumped. They came over for a preview visit to see the place and the next week they moved in. It feels good and right. We had a former patient from up north needing to do his follow-up, so he came as well, but has already returned home.

We are used to the phases we go through as a little community. We are all in the “get to know you” phase, figuring personalities out. Everyone is on their best behavior. I always have to identify my point person who is going to tell me when they run out of things, or when someone has been sick, and things like that. One of our ladies does not speak Portuguese, so that is always an interesting dynamic. Her roomie translates when needed. One lady is struggling with post-Chemo throat sores. It has been rough, but I think yesterday she made a bit of turn for the better.

Here are 4 of the 5. Joana, with the throat sores was not up for a picture yet, and you can imagine why. We always give people the option to opt out of photos. Know she is lovely. I am betting she’ll want a picture soon.

Augusta
Gisella
Changi
Luisa

We are also excitedly taking a few new steps.

First, I finished my Master’s degree in Palliative Care and there is an opportunity for me to sit two times a week on a cancer tumor board, where the oncologists, gynecologists, and head/neck/throat specialists, discuss complicated cases. I hope to be a voice for whole patient care and symptom/pain management.

Second, Jon, with all he is learning in his Master’s of Thanatology program, has offered to serve families of the dying as hospital treatment transitions from curative to non-curative and difficult conversations must be had about the mysteries and difficulties of dying. The oncologists work super hard and their time is full. Jon has more time to linger and discuss and answer questions. He has been able to do this a couple time now, and it has gone well.

Third, for the first time there are 2 oncologists in the northern city of Beira, able to treat patients with Chemotherapy from there! This is an exciting step for Mozambique. It does, however, affect our project as most of our patients are from those northern regions. We are shifting a bit to accommodate this new reality and include patients from the closer provinces of Gaza and Inhambane. What this means is that they may not stay with us for the duration of their treatment, but rather about a week at a time and then return home, and come back each month.

Finally, we are opening up the option for local cancer hospice patients. We want to offer two things. For those who would like their loved ones to stay home, we want to offer home visits for education and support. For those who feel overwhelmed or incapable, we will offer our home. The patient can come and if a family member would like to stay, they will also have a bed. Because it is just Jon and I right now, we will only offer home support to 1 or 2 families at a time, until we get a feel for the workload. The same will be true for inpatient hospice at our home. We want to offer quality service, so we do not want to run ourselves too thin.

Pray with us in the days ahead. We are constantly reminded that we are not alone. Thank you for your support, messages, and love.

P.S.

Current Covid-19 Stats in Mozambique are: 1060 active cases and 11 deaths to date. God is being merciful!